We have dedicated ourselves to helping to fund research into the detection and treatment of hypertrophic cardiomyopathy and other heart conditions in pre-adolescent children.
We are also aiming to fund projects to help support those families who are affected by these conditions.
Max’s Foundation funds individual projects within these areas.
We are voluntarily run and 100% of our donations are used for funding our chosen projects.
The Centre for Inherited Cardiovascular Diseases at GOSH
In our first year we decided to raise funds for research into the early detection of hypertrophic cardiomyopathy. Together with the Great Ormond Street Charity, we have been and continue to be fundraising for the Centre for Inherited Cardiovascular Diseases at Great Ormond Street Hospital, the largest centre in the UK dedicated to the evaluation and management of the full range of inherited cardiac conditions in children.
The Centre is headed by Dr Juan Pablo Kaski, a consultant paediatric cardiologist and our ambassador. His clinical and research interests are focused on the clinical and genetic characterisation of inherited cardiovascular disease and sudden cardiac death in childhood. He won the Young Investigator Award for Clinical Science from the European Society of Cardiology in 2008 for his work on the genetic basis of pre-adolescent hypertrophic cardiomyopathy.
The Centre’s focus is on paediatric inherited cardiac conditions, with a special interest in hypertrophic cardiomyopathy (HCM). Its aims are firstly to be able to identify HCM in children, develop therapies to halt the progression of HCM and eventually prevent the manifestation of HCM itself.
We are delighted to be funding a new role of Research Nurse at the centre. This is a 3 year contract and her job will be to introduce patients to ground-breaking trials and analyse data from studies aiming to find new and better ways to detect rare heart conditions, particularly hypertrophic cardiomyopathy.
Great Ormond Street Hospital
Continuing our partnership with the the Great Ormond Street Charity, we are also looking to purchase vital equipment for use during and after life changing heart surgeries on young children at the hospital.
We have committed to 2 infra red spectroscopy machines and a defibrillator.
During open heart surgeries, there is a danger of too little oxygen reaching the brain and so putting children at high risk of suffering brain damage. The infra red spectroscopy measures the oxygen levels in a chid’s brain during the surgery and will alert the team if any action needs to be taken, so reducing the risk of brain damage and other ensuing complications.
The defibrillator also has an inbuilt analyser so it can test itself regularly. This means that the medical team will always have access to a working critical cardiac resuscitation equipment at all times, allowing them to quickly and easily help their young patients.
Dave, Shira and Molly Schiller
The Foundation was set up by Max’s parents, Dave and Shira Schiller together with his sister, Molly. They are all trustees of the charity.As a family they are overwhelmed by the support and kindness that has been shown to them and the charity. They maintain that they would not have been able to get this far without the love and strength from their friends, family and supporters.
Dr Juan Pablo Kaski
Dr Kaski is a consultant paediatric cardiologist and head of the Centre for Inherited Cardiovascular Diseases at Great Ormond Street Hospital, the largest centre in the UK dedicated to the evaluation and management of the full range of inherited cardiac conditions in children.
His clinical and research interests are focused on the clinical and genetic characterisation of inherited cardiovascular disease and sudden cardiac death in childhood. He won the Young Investigator Award for Clinical Science from the European Society of Cardiology in 2008 for his work on the genetic basis of pre-adolescent hypertrophic cardiomyopathy.
Angus Fraser MBE
Angus Fraser is currently Middlesex County Cricket Club’s managing director of cricket, and a former English cricketer and journalist)
He is delighted to be an ambassador for Max’s Foundation as he has stated below.
“The initial reason is because Dave – Max’s father is an ex-school mate of mine and I can only imagine what he and his family went through when Max tragically passed away. To lend my support to such a worth-while cause like this is the least I can do. The second reason is even more personal. My family will never forget the way Great Ormond Street hospital looked after my son Alex, when he was diagnosed with a brain tumour in November 2006. It was humbling and the staff helped through the most difficult period of our lives. Alex is now 23 years old, fit healthy and enjoying life. By enabling this to happen I would never turn down the chance to support something that helps young children and GOSH. “
Suzanne Brennan has more than 16 years experience working in the Third Sector, predominantly as Director of Communications and subsequently Campaigns Director at the Willow Foundation. She is currently Deputy Director of the Regent Street Association – a role which includes working on the association’s various charitable initiatives in support of both local and national organisations. Suzanne is committed to her role as trustee and building a legacy in Max’s name.
Louise brings more than 30 years’ experience in industry to the Foundation. Her skillset is diverse from: Broadcasting; Leadership Development; Events/Live Broadcasts, Project Management, & Press, PR/Change & Communications. She has worked for various organisations including: Marks & Spencer and the BBC as well as leading her own businesses, Training Works and D&L Media Ltd. She has also supported charities: Caron Keating Foundation, Grief Encounter, Children in Need and BBC Media Action. She is honoured to be part of building Max’s legacy and the Foundation.
Pippa Collins is a newcomer to Max’s Foundation and comes with a wealth of experience in the charity sector. She worked as Director of Fundraising for eight years at breast cancer charity Future Dreams and has now joined the team at Variety Children’s Charity as consultant on major fundraising, strategy and event management. Pippa is delighted to work alongside such a fantastic group of people at Max’s and be able to play a part in changing the future of children with this devastating condition.
Phil Maurice has worked in Financial Services for over 30 years as a Business Development Manager and for the last 10 years has worked closely with the HR Directors of many large City based companies in offering Financial Advice to their employees. For the last 12 years Phil has been a friend and colleague of Dave”s and and wanted to help in any way he could to support the work of Max’s Foundation. Now retired Phil is happy to give as much time as possible to support the Foundation
Shane has over 20 years experience consulting in digital communications. During this time he has been the force behind a multitude of digital and technology teams across a wide range of brands spanning finance, technology, entertainment, FMCG and sports. Shane has worked for a number of WPP agencies and heads up the content team at PRISM a sports marketing and PR agency. Shane is a qualified PRINCE 2 Practitioner, holds a first class Masters in Multimedia Systems as well as a BSc in Business Information Technology.He is proud to be a member of Max’s Foundation and pushing the important stories and activities the Foundation is working on.
ASSOCIATED BOARD MEMBERS
Scott has worked in financial services for more than 25 years in areas such as IT, asset management, debt advisory, risk management and insurance. He has also helped organise events for a number of charities over the years in association with his professional activities. Max’s Foundation is the first time he has focused his efforts on one charity and Scott is delighted to be part of the team running the Foundation and supporting the trustees.
Max’s Foundation could not function without our amazing volunteers who help us in a huge variety of ways.
We always need people to help us at our events and if you would like to join our incredible team then please contact us